 |
|
In affiliation with
Events
2023
2022
| Date | Description |
|---|---|
| MAR 11 | The Inaugural CHOC and UCI Rare Disease Symposium & Family Conference |
2021
2020
| Date | Description |
|---|---|
| DEC 19 | Annual UPF and UC Irvine Pompe Patient Meeting |
| SEP 12 | FSIG & UC Irvine Virtual Meeting |
| JULY 26 | Prader-Willi Syndrome Walk |
2019
| Date | Description |
|---|---|
| OCT 7 | Annual UPF and UC Irvine Pompe Patient Meeting |
| AUG 28 | John Jefferies-Fabry Disease |
| MAY 2 | 3rd International NUBPL Research Meeting |
| MAR 14 | NUBPL Research Family Meeting |
| MAR 8 | The Division of Genetic and Genomic Medicine will host the inaugural Southern California Rare Disease Genetics Meeting at the Sue & Bill Gross Stem Cell Center on March 8, 2019. |
2018
| Date | Description |
|---|---|
| OCT 07 | Annual UPF and UC Irvine Pompe Patient Meeting |
| MAY 02 | 3rd International NUBPL Research Meeting |
2017
| Date | Description |
|---|---|
| MAR 14 | NUBPL Research Family Meeting |
2016
| Date | Description |
|---|---|
| AUG 28 | John Jefferies-Fabry Disease |
| JUN 11 | VCP IBMPFD Family Day in Jacksonville |
| JUN 04 | Pompe Patient and Family Meeting |
| MAR 04 | Nina Raben, MD, PhD, Lysosomal Storage Diseases: Autophagy, Lysosomes, Mitochondrial Studies |
2014
| Date | Description |
|---|---|
| MAY 27 | Clinical trial gets underway to study the effects of Diazoxide on obesity and hyperphagia in patients with Prader-Willi Syndrome. Currrently recruiting. |
| JUNE 13 | Dr. Virginia Kimonis gives a Grand Rounds lecture on the Genetics of Obesity at Miller Children's Hospital in Long Beach. |
